Patient Understanding of their disease, diagnosis, adherence and impact of research.
Congratulations to Dr. Mary Canavan and Dr. Viviana Marzaioli, of the Molecular Rheumatology research group, who presented their patient- focused research poster at the American College of Rheumatology virtual Convergence 2020. This poster detailed the findings from their study into patients’ understanding of their disease and the role their understanding plays in research studies. This study was a collaborative survey with Arthritis Ireland and the Health Research Board Ireland.
Inflammatory Arthritis & You
A huge thank you to everyone who attended our “Inflammatory Arthritis & You” workshops on the 29th September and 6th October! These were online patient -focused workshops held for those living with inflammatory arthritis, in which both patients and researchers gave an insight into different aspects of the disease: from living with arthritis and breaking down what inflammatory arthritis is to the studies that are currently underway in Trinity College Dublin aiming to understand the mechanisms involved in inflammatory arthritis onset.
World Arthritis Day
It’s World Arthritis Day! To mark this important day, we’ve created this short video to explain the various types of patient centred, translational research that we do in the Rheumatology group in the Trinity Biomedical Sciences Institute.
Pint of Science
Pint of Science brings some of the most brilliant scientists to your local pubs and cafes to discuss their latest research and findings with you. You don’t need any prior knowledge, and this is your chance to meet the people responsible for the future of science (and have a drink with them). The festival runs over a few days in May every year, but we occasionally run events during other months.
Dublin Chapter Manager – Our very own Megan Hanlon
Megan is a PhD student in the Molecular Rheumatology research group in Trinity. She also teaches a tailored immunology course to secondary school students in disadvantaged area with the Trinity Access Programme. Looking forward to working with PoS this year to further grow her passion for sci comm!
For more information please follow the link!
Inflammatory Arthritis and You Workshop
Arthritis Ireland in partnership with Trinity College Dublin have organised a series of workshops to consult people living with inflammatory arthritis.
Inflammatory arthritis is a common autoimmune condition that can cause disability for patients in day-to-day tasks. While new medications have advanced the treatments for many patients, it is still unclear which patients will develop severe disease, who will respond to current therapies and who will experience side effects.
To further understand disease progression and response we have designed these workshops to engage with patients and aim to address:
(i) patients understanding of their disease
(ii) the risk factors and potential immune system changes involved, and
(iii) how research that directly involves patients may provide important insight to better treatment strategies for Inflammatory arthritis.
Some pictures from the Dublin workshop below!
Patient Awareness Initiative Survey
Led by Molecular Rheumatology, TCD with Arthritis Ireland, funded by the HRB. More than 1,400 completed surveys. Preliminary analysis suggests patients need more information on early diagnoses, drug adherence and pregnancy.
Transition Year Students – Work Experience 2019
Dr Sarah Wade, Molecular Rheumatology, supervising transition year students in the lab, 2018.
Prof Ursula Fearon speaking to patients at Arthritis Ireland AGM 2017. Prof Fearon discusses the need for personalised medicine in the treatment of rheumatic diseases.
Prof Ursula Fearon updates @Arthritisie patients on current research @tcddublin @tcdTBSI @CardArthritis #arthritis
Dr Charlene Foley speaking about Downs Arthropathy to patients at Arthritis Ireland public lecture. Dr Charlene Foley research is co-funded by Arthritis Ireland and Down Syndrome Ireland.
Eular centre of excellence award